E- ISSN: 2709-5533
Vol 5 / Ene - Jun [2024]
globalrheumpanlar.org
PANLAR 2024 COVERAGE
Patient-Centered Medicine Takes Center Stage at PANLAR 2024
Autor: Estefanía Fajardo: Science journalist for Global Rheumatology by PANLAR, estefaniafajardod@gmail.com
DOI: https://doi.org/10.46856/grp.27.et184
Cite: Fajardo E. Patient-Centered Medicine Takes Center Stage at PANLAR 2024 | Global Rheumatology. Vol 5/ Ene - Jun [2024] Available from: https://doi.org/10.46856/grp.27.et184
Received date: March 26th / 2024
Accepted date: March 27th / 2024
Published Date: April 1th / 2024
The countdown to the PANLAR 2024 Congress has already begun, bringing with it a series of coordinated events that are part of the process. Among them, and to highlight, is the VII Pan American Congress of Patients with Rheumatic Diseases, which will be held virtually on April 4, one week before the gathering in Barranquilla.
"Since 2018, we started with patient congresses, in Buenos Aires and Quito they were face-to-face, and the rest were virtual. What we must highlight about these congresses is that they were all held between patients and doctors with the aim of working together, which is why in 2018 the group TOGETHER was created to have collaboration and coordination," says Dr. Dora Pereira.
This work, she affirms, was born with the intention "of finding spaces, activities, and tools to find solutions, greater integration, and contribute to health systems."
The patient-centered care approach, promoted by PANLAR, represents a fundamental change in healthcare delivery by prioritizing the patient as the epicenter of the care process and decision-making. This philosophy entails open and collaborative communication between doctors and patients, where active patient participation in all decisions related to their medical care is encouraged.
In addition to considering the physical, emotional, social, and spiritual aspects of the patient, comprehensive care that meets all individual needs is sought. The close collaboration between PANLAR and patient organizations demonstrates a shared commitment to continuously improving healthcare standards, emphasizing the importance of empowering patients in their own care and well-being.
This Patients Congress consists of two plenaries and four symposia, focusing on patient-centered activity, as well as physical activity; how to know if my child has a rheumatic disease; what's new in diseases; and myths and realities.
Furthermore, within the framework of the PANLAR 2024 Congress in Barranquilla, patient participation will be active. The II Meeting of Patients with Rheumatic Diseases will be held on April 13, a face-to-face event mainly aimed at the participation of patients from the geographical region where the Pan American Congress is held.
As a novelty, PANLAR 2024 will also feature the "Patient-Centered Care track" as part of the scientific program for healthcare professionals interested in participatory medicine topics, as scientific activities where the patient plays a central role have been dubbed. This is a new element and constitutes part of the effort to integrate the doctor-patient relationship and its importance.
"This is something very important. Not everywhere is this union and this work between doctors and patients found. We must remember that educating the rheumatic patient is a continuous process, it is part of the therapeutic program, it collaborates in adherence, contributes to the doctor-patient relationship, in shared decision-making. We have to know that an informed patient will actively and positively participate in processes over time," says Dr. Pereira.
The goal at PANLAR is to foster alliances, understand that there are barriers, but also to identify tools to overcome them. "Not everywhere are educational talks organized in different regions together with patient associations, that is very positive and very important in PANLAR's vision," she adds.
The work, she indicates, "is growing day by day," and seeks to transform not only the relationships between doctors and patients but also to include governmental entities. "It is an alliance that helps us achieve the goal we have, which is to educate. It is something that is very satisfying, especially when you see patients who need help, and if I am there ready to collaborate in the education of that patient, I feel comforted. It is very gratifying to be able to work together with the patient."
In addition to this, as extramural activities framed within the Congress, there will be Rheumatology on the Street, the program aimed at drawing attention to the early and timely detection of rheumatic diseases organized jointly with the Health Department of Barranquilla on April 12.
There will also be Live and Move on April 13, a sports activity in which people attending the Pan American Congress will participate with the aim of motivating the public to stay active to prevent rheumatic diseases.
Program:
Patient-centered care track: consult the scientific program
II Patient Meeting: April 13 from 8:30 a.m. to 12:00 p.m. Purple Oak Room. Registration at: https://forms.gle/zGTqrxSByi7wSaFC6
To learn about the event program to be held from April 10 to 13 in Barranquilla, click here: https://congreso-panlar.com/.
